Hello Everyone!
As most of you know, read or can read, in my last post I said goodbye. I was having a really hard time being positive about my PKU and the blog about my struggles wasn't helping anything. As you can imagine, dealing with the struggles in everyday life was hard enough, but then writing about them and editing the blog posts were making it harder. In some ways seeing them on my computer screen was making it more real (as if dealing with them on a daily basis wasn't real enough for me).
Once I told my husband I said goodbye and had decided to end the blog, he begged me to keep blogging. He told me even though the struggles were hard, that doesn't mean I have to only make the blog about the bad things. I can write about living daily life, good and bad.
He reminded me that just 2 short years ago I was lost with my PKU. I didn't know as much about it as I do now. After a lot of research and joining groups on social media, I realized how much I didn't know about my disease, and ultimately myself. I know that sounds lame, I didn't know myself, but it's true. A lot of my characteristics, my moods, my whole life has been touched by PKU.
He made a point that is playing in my head over and over again as I pondered picking up blogging again. That point he made.... There are a lot of people out there who don't know as much about the disease as they should, or as I do. There are a lot of people who are now where I was 2 years ago. They have no idea that PKU plays a part in almost all, if not all, aspects of your life.
So, as you can tell, I have decided to restart this page. But in doing so, I am going to be making a lot of changes. Starting with the name.... This blog is no longer going to be called THE DAILY STRUGGLES OF PKU. It is now going to be called LIVING WITH PKU. The new name takes the negativity out of it. There is no need to feel sorry for ourselves, we are living life with a disease that as of now has no cure. Having pity for ourselves and asking others to pity us doesn't help us at all.
I am here to support those who, like myself, have PKU, those people living with PKU that don't have as much information about it, and those with loved ones living with PKU.
Until Next Time,
Laura (Formerly known as Phe)
