How Do I Look?

In today's society, there is a definite image that is considered "beautiful." If you look at celebrities, most if not all have tan skin with beautiful hair and eyes. You rarely see one with pale white skin, blond hair, and blue eyes. But someone with PKU has exactly that.

As I have stated in previous posts, people with PKU can't have phenylalanine. Well, phenylalanine is a big part in the ingredients of pigment. So without pigment, people with PKU mostly have blond hair, blue eyes, and pale white skin.

Nowadays, you can change almost anything about yourself. So of course, we have the option to dye our hair. Someone with PKU can do that, but most dyes won't last long in our hair. We have the option to go tanning, but the tan won't last long at all, if it even works. I don't know who would want to change their eye color, but there is colored contacts for that.

As for me, I have a very mild case of PKU which means my body makes a little amount of pigment. So I have brown hair, blue eyes, and pale white skin. I don't mind, that's how God made me. :)

I am thankful for what God gave me and how He made me. Just remember not to take for granted your skin or hair colors. Someone else would love to have them and can't get them. :)

Until next time,
Phe

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Phe_ThePKUGirl

A Little Update

So, a few posts ago I told you about the medication, Kuvan. I want to know more about it and see if I would be a good candidate for it. The only way to do that is to see my Metabolic Specialist. The only problem was that it had been 4 to 5 years since I saw her. I didn't remember her phone number or her name ( my mom did all that for me).

Well, it took me a while but I found her name and her phone number. I called and I now have an appointment in February 7th. I am very nervous. She has always been a harsh lady, doesn't sugar coat ANYTHING. I'm hoping I remember her wrong. But if not I know she is going to chew me out for going off diet. But I know I that I deserve a good talking to.

Anyways, that is my update.

Until next time,
Phe

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Phe_ThePKUGirl

Homemade

When you are running late for work and you don't have time for breakfast what do you do? Some people stop at McDonald's or another fast food restaurant. When you get home from a long busy day at work and you don't want to cook what do you do? Some people go out to dinner. That's not so easy for someone with PKU.

Have you ever went to a restaurant and tried to order something with no meat and low protein. Trust me it doesn't leave much on the menu to choose from. Every Sunday night after church my husband's family and some people from the church go to McDonald's for some food and time to fellowship. Everyone gets some sort of meat. As for me it's the same thing every time, french fries and a fruit and walnut salad (I don't eat walnuts).

McDonald's
http://www.mcdonalds.com/us/en/full_menu_explorer.html
Look through the menu and find 8 things someone with PKU can order without having to alter anything. (Not including drinks or desserts)

Burger King
http://www.bk.com/en/us/menu-nutrition/full-menu.html
They have even less to offer than McDonald's.

Wendy's
http://wendys.com/food/Menu.jsp
Not much here either.

Taco Bell
http://www.tacobell.com/food/tacos
Slightly more than the others.

Some people think fast food shouldn't be eaten anyways no matter what kind a hurry you are in. Well, let's take a look at some sit down resturants.

Olive Garden
http://www.olivegarden.com/Menu/Specials/

Red Robin
http://www.redrobin.com/food/

Applebee's
http://www.applebees.com/


Ok, you get the point. It's very hard to go to a restaurant that has a wide variety of low protein foods. I would rather be safe than sorry and make things at home so I know what goes into my food. Next time you go out to eat count the items on the menu and see how many things can be ordered by someone with PKU.

Until next time,
Phe